My son was given world's most expensive gene therapy drug - now he can walk

A five-year-old boy who received the world's most expensive drug as a baby has made "incredible progress" and can walk ...
WTVD

Child fights for her life by taking 'most expensive drug in the world'

REDONDO BEACH, Calif. -- Ceri and Rory Devine welcomed their first child, Rhys, into the world three months before COVID-19 shut down the country. It wasn't long before the new parents from Redondo ...
KING5

Toddler's family fights for access to 'World’s Most Expensive Drug'

BLAINE, Minn — What is the value of a possible cure? For a Blaine mother, it is two million dollars, the cost of the world’s most expensive drug. But it’s a drug that their insurance will not cover.

Boy, 5, Born with Rare Genetic Disorder Walks by Himself After Receiving World’s Most Expensive Drug

A 5-year-old boy who was born with a rare genetic condition is now able to walk by himself, his mother has said, after ...
KHOU 11

Toddler fights for access to 'World’s Most Expensive Drug'

BLAINE, Minn — What is the value of a possible cure? For a Blaine mother, it is two million dollars, the cost of the world’s most expensive drug. But it’s a drug that their insurance will not cover.