The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.

The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

Our annual conference offers opportunities for people of all ages to learn about Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions from experts in the field, network ...

Start here to begin learning about Marfan syndrome and related conditions. We offer a range of online and in-person resources to help you get started and learn more when you are ready. Learning ...

Volunteering for The Marfan Foundation enables you to give back to the community and help create a brighter future for everyone living with Marfan syndrome and related conditions. There are many ways ...

Learning you or someone in your family has Marfan syndrome can deeply affect the quality of life of the individuals and families coping with it. That’s why it’s important to get an appropriate ...

Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.” Marie Law with her son, David. He is the only one of her five children who has Stickler ...