Symptoms and Disease Progression in Pediatric Patients With Dravet Syndrome | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
Symptoms and Disease Progression in Pediatric Patients With Dravet Syndrome | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
9 months ago
neurologylive.com
As we observe #DravetSyndromeAwarenessMonth, we are honored to share Jake's story, a courageous individual who has been living with Dravet syndrome since his first seizure at the age of 7 months. Jake, now 26 years old, has demonstrated incredible strength in his ongoing battle against this condition. During our Externally-Led Patient-Focused Drug Development Meeting last year, Jake's mother fearlessly shared their family's journey, shedding light on the challenges they have faced and continue t
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As we observe #DravetSyndromeAwarenessMonth, we are honored to share Jake's story, a courageous individual who has been living with Dravet syndrome since his first seizure at the age of 7 months. Jake, now 26 years old, has demonstrated incredible strength in his ongoing battle against this condition. During our Externally-Led Patient-Focused Drug Development Meeting last year, Jake's mother fearlessly shared their family's journey, shedding light on the challenges they have faced and continue t
53.7K viewsJun 27, 2023
TikTokdravetsyndromefoundation
Journey Through Parenthood | Dravet Syndrome
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Journey Through Parenthood | Dravet Syndrome
Nov 27, 2024
wsaz.com
Dravet syndrome causes global, developmental delays ranging from moderate to severe . ##nonverbal##dravetsyndrome##fyp##epilepsy##awareness##scn1amutation##curedravet##fy##nottodaydravet##forupage##🦋##💜##cureepilepsy
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Dravet syndrome causes global, developmental delays ranging from moderate to severe . ##nonverbal##dravetsyndrome##fyp##epilepsy##awareness##scn1amutation##curedravet##fy##nottodaydravet##forupage##🦋##💜##cureepilepsy
Dec 6, 2024
TikTokalina_dravetwarrior
Understanding Absence Seizures in Dravet Syndrome
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Understanding Absence Seizures in Dravet Syndrome
33.5K views7 months ago
TikTokbseizurefree
Linda Laux, MD, Explains Dravet Syndrome
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Linda Laux, MD, Explains Dravet Syndrome
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YouTubeAnn & Robert H. Lurie Children's Hospital of Ch…
Dravet Syndrome
Dravet Syndrome
Sep 7, 2021
encoded.com
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Understanding Dravet Syndrome | By Dr. Priti Mhatre|
349 views10 months ago
YouTubeDr Priti Mhatre's Developmental Clinic
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Understanding Dravet Syndrome and Its Impacts
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TikTokalina_dravetwarrior
Dravet Syndrome Clinic
Aug 11, 2022
childrensmercy.org
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Galia Wilson - Dravet Syndrome Awareness
791 viewsSep 21, 2023
YouTubeUCB
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Notice when the seizure starts she stops using her arm and her mouth is pressed closed. They are only small but they take so much and they are happening dozens of times a day. It is exhausting, painful and debilitating for her. And soul crushing for her sisters myself and her carers. Tonight we started plan B to get them under control. And we’ve made plan C, D & E just incase.. Dravet Syndrome is relentless.. but so are we 💥
37.2K viewsOct 24, 2024
TikTokmedicalmumma
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First public seizure… Waited 30 minutes for 2 ambulances, lucky they arrived when they did because the oxygen bottle was practically empty. She needed airway support for a long time… Grass and dirt everywhere, including in Everly’s eyes, mouth and BVM. In the sun using my body as a shield to try and keep her cool so she would stop seizing so we could move her to the shade. While her support worker breathed for her… That … was a lot of damage.. 😣 The balance between letting her live and keeping
273.3K viewsJan 8, 2025
TikTokmedicalmumma
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Understanding Dravet Syndrome: Beyond Seizures and into Developmental Challenges
287.5K viewsFeb 4, 2024
TikTokbseizurefree
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Understanding Dravet Syndrome: Managing Seizures and Family Support
462.8K views3 months ago
TikTokgeorginacoulson20
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Understanding Dravet syndrome: key features and the importance of standardized care
468 viewsMar 21, 2025
YouTubeVJNeurology
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Understanding Dravet Syndrome and Advocacy for Awareness
6.3K views4 months ago
TikTokgeorginacoulson20
45:56
Beginner's Guide to Dravet Syndrome
520 viewsDec 10, 2021
YouTubeDravet Syndrome Foundation
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Dravet Syndrome: A Child's Resilience and Friendship
1.3M views8 months ago
TikTokgeorginacoulson20
3:02
Genetic Advances and Dravet Syndrome with Professor Ingrid Scheffer
375 viewsJun 10, 2024
YouTubeDravet Syndrome UK
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Dravet Syndrome: Early Signs & Specific Treatment
8.8K views3 months ago
TikTokdoctor.bing
1:14
Understanding Nocturnal Seizures in Dravet Syndrome
13.5M viewsSep 14, 2023
TikTokalina_dravetwarrior
2:43
What is Dravet Syndrome?
12K viewsJul 25, 2022
YouTubeDravet Syndrome Foundation
4:59
Understanding Dravet Syndrome: A Comprehensive Overview
29.7K views11 months ago
TikTokmedicalmumma
7:40
What is Dravet Syndrome and what should you know about this rare epilepsy
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YouTubeCURE Epilepsy
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Parenting a Child with Dravet Syndrome: The Challenges and Joys | Marlee's Journey
92.6K viewsSep 15, 2024
TikTokmedicalmumma
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Types of Seizures in Children with Dravet Syndrome
Aug 12, 2024
TikTokalina_dravetwarrior
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Understanding Absence Seizures in Dravet Syndrome Patients
888.8K viewsMar 31, 2023
TikTokgazzaofficial01
11:43
EEG Talk - ECS: Dravet syndrome (Charlotte Dravet)
1.4K viewsFeb 17, 2023
YouTubeFábio A. Nascimento
0:12
Replying to @◞ Dravet syndrome needs a cure . Not only is it a severe and life-threatening seizure disorder, but it takes away abilities and learning begins to slow or even stop . #fyp #dravetsyndrome
41.9K viewsJan 21, 2025
TikTokalina_dravetwarrior
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