"Scleroderma Foundation focuses on mechanistic research to discover pathway drivers in the disease"
2:47
"Scleroderma Foundation focuses on mechanistic research to discover pathway drivers in the disease"
5.6K views2 months ago
YouTubeBeryl Elites
Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
1:52
Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
3.3K views10 months ago
FacebookScleroderma Research Foundation
Check this out: Dr. Toby Maher explains the risk factors for ILD in scleroderma 🎥 In this video, Dr. Toby Maher, Professor of Clinical Medicine at the University of Southern California and Co-Principal Investigator of CONQUEST, explains the characteristics and risk factors that can lead to interstitial lung disease (ILD) in people with scleroderma. This clip comes from our recent webinar, "Scleroderma and the Lungs: A Spotlight on ILD", presented on September 17 in recognition of ILD Day—an awa
1:21
Check this out: Dr. Toby Maher explains the risk factors for ILD in scleroderma 🎥 In this video, Dr. Toby Maher, Professor of Clinical Medicine at the University of Southern California and Co-Principal Investigator of CONQUEST, explains the characteristics and risk factors that can lead to interstitial lung disease (ILD) in people with scleroderma. This clip comes from our recent webinar, "Scleroderma and the Lungs: A Spotlight on ILD", presented on September 17 in recognition of ILD Day—an awa
3.9K views7 months ago
FacebookScleroderma Research Foundation
Want to learn how to ease some scleroderma symptoms without medications? Check out this 2024 Patient Forum highlight 🎥 In this clip from the 2024 Patient Forum, Dr. Ankoor Shah (Associate Professor of Medicine, Duke University) reviews options for the non-pharmacological management of systemic sclerosis. His session covers innovative approaches for managing Raynaud's Phenomenon, digital ulcers, GI symptoms, joint pain, contractures, and fatigue. To learn more about symptom management in systemi
1:27
Want to learn how to ease some scleroderma symptoms without medications? Check out this 2024 Patient Forum highlight 🎥 In this clip from the 2024 Patient Forum, Dr. Ankoor Shah (Associate Professor of Medicine, Duke University) reviews options for the non-pharmacological management of systemic sclerosis. His session covers innovative approaches for managing Raynaud's Phenomenon, digital ulcers, GI symptoms, joint pain, contractures, and fatigue. To learn more about symptom management in systemi
3.6K viewsSep 11, 2024
FacebookScleroderma Research Foundation
Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
0:51
Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
3.4K views6 months ago
FacebookScleroderma Research Foundation
Dr. Kathryn Torok Talks Juvenile Scleroderma
2:13
Dr. Kathryn Torok Talks Juvenile Scleroderma
75 views1 month ago
YouTubeSRFCURE
Paul Didio Patient Forum Testimonial
0:42
Paul Didio Patient Forum Testimonial
345 views4 weeks ago
YouTubeSRFCURE
2:40
Rotator Cuff Pain and Scleroderma - What You Need to Know
346 views3 months ago
YouTubeScleroderma Foundation of Greater Chicago
1:11
The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
1.9K viewsJan 3, 2025
FacebookScleroderma Research Foundation
0:16
Scleroderma Conference March 15, 2026
12 views3 months ago
YouTubeThe Mo Experience
1:31
It’s Scleroderma Awareness Month, and Brian is telling us why he chooses to #SayScleroderma! Why #SayScleroderma? Because not enough people know what this disease is or what it does. Because delayed awareness leads to delayed diagnoses and treatment. And because scleroderma must END. We are so grateful to Brian for sharing his scleroderma journey, and for helping spread awareness about this challenging disease. #SayScleroderma is a collaborative movement to make this disease known—which means th
9.2K viewsJun 20, 2025
FacebookScleroderma Research Foundation
1:17
SSWC 2026: Janet Pope on Emerging Research in Systemic Sclerosis
56 views3 months ago
YouTubeScleroderma Forum
2:02
Nick Kyrgios fulfills disabled kid's bucketlist with kindness | Scleroderma explained by Adrian Portelli
6.3M viewsNov 1, 2024
TikTokitssozer
0:05
Understanding Scleroderma: Insights and Experiences
515.4K views4 months ago
TikTokunamordidaforyouguys
2:30
Understanding Scleroderma: Causes and Effects on Violet Moro
1.4M viewsSep 18, 2023
TikTokvioletemor
0:05
Understanding Scleroderma: A Journey of Resilience
3M views7 months ago
TikTokmakaylareleford5
0:52
Understanding Gladys Njeri's Scleroderma Experience
513.6K views11 months ago
TikToksymoh254trend
0:43
Understanding Scleroderma: Causes, Symptoms, and Treatment
2.8M viewsAug 14, 2023
TikToktherealtiktokdoc
5:31
Understanding Scleroderma and Its Impact on Life
488.6K views5 months ago
TikTokhtettyhehe
2:58
A long road to answers: watch Rosa D. (dx 2019) tell her story of navigating her scleroderma diagnosis 🔍 For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences to help raise awareness around scleroderma and the challenges that so many people encounter on the path to diagnosis. At the Scleroderma Research Foundation, we are dedicated to advan
233.7K views3 months ago
TikToksrfcure
See more
Static thumbnail place holder