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so i have a dystonic tremor now🙂 it comes in attacks, not constant. but it’s super sudden, no warning, so painful and upsetting😔 on the 14th of December i just randomly started shaking & jerking while my neck muscles were contracting. i thought it was a tic, we only realised what it was by the time i’d had 3 attacks. they’re so painful, especially in my neck which severely contracts and often my jaw & tongue too. i’ve had dystonia for 5 years now but never a tremor like this. i’m trying to fil
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so i have a dystonic tremor now🙂 it comes in attacks, not constant. but it’s super sudden, no warning, so painful and upsetting😔 on the 14th of December i just randomly started shaking & jerking while my neck muscles were contracting. i thought it was a tic, we only realised what it was by the time i’d had 3 attacks. they’re so painful, especially in my neck which severely contracts and often my jaw & tongue too. i’ve had dystonia for 5 years now but never a tremor like this. i’m trying to fil
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